I'm thirty-four, I've had an ostomy since 2022, and I have been seeing a man for five months and he does not know.
Ulcerative colitis, diagnosed at twenty-three. Nine years of escalating treatment and then an emergency in March 2022 and a subtotal colectomy, and I have an ileostomy, which means a stoma on my abdomen and a bag, and I will almost certainly have it for life because I'm not a good candidate for the reversal surgery.
Let me say the useful parts first, for anyone who lands here from a search at two in the morning, because I did that for a year.
It is not a smell. That's the first fear and it's wrong. Modern appliances are odor-proof when they're sealed, and mine is sealed, and I have been in meetings and on planes and in a yoga class.
It does not look like you think. Mine is about the diameter of a quarter, flat against me, and the bag is the size of a phone and sits under clothes. In a loose shirt nobody has ever noticed. Nobody.
It changed my life for the better, materially. Before the surgery I was going to the bathroom between fifteen and twenty-five times a day and I had not been more than four miles from a known toilet in three years. I had quit a job over it. After the surgery I went to Portugal.
So that's the honest frame: this thing gave me back a life, and I'm not writing because I hate it.
I'm writing because of a man.
We met in June through friends. He's thirty-eight, he's divorced, he has a daughter he has every other weekend, he's a kind person who texts when he says he will. Five months. We have slept together — and here is the thing that will make this post confusing to people who don't know about this — we have slept together and he still doesn't know.
That's possible. It's possible with a bag cover, in specific positions, in the dark, with a shirt on, which I have told him is a thing I'm self-conscious about generally. And it worked, and I hated every second of the working.
Why I haven't told him:
I told someone, once. In 2023. Four months in, over dinner, carefully, with the little pamphlet-grade explanation I'd rehearsed. And he was fine. He was so fine. He said all the right words. And then over about five weeks he became busy, and then he said something about not being in a place for something serious, and that was that.
And I'll never know whether it was the bag. That's the part that broke something. I will never know. Maybe he genuinely wasn't in a place. Maybe he was lying. I have spent two years not knowing, and the not-knowing was worse than a no would have been.
So now I have a man who doesn't know, and every week makes it worse, because the longer I wait the more it looks like a deception rather than a disclosure. I know this. I can see the trap I'm building. I'm building it anyway, one week at a time, and we have been invited to his cousin's wedding in February.
What I actually want to ask, and I'm asking people with an ostomy and not people with opinions:
When did you tell, in relationships that lasted? Early-early, like date three, framed as a fact? Or after? And did anybody find a way to say it that didn't turn it into the subject of the evening?
Because I have a whole speech and the speech is the problem. The speech is nine sentences long and it has medical words in it and by sentence four I'm a patient instead of a woman he's been seeing for five months.
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